The Boy Whose Skin Fell Off (2004)

The Boy Whose Skin Fell Off

2004

Documentary TV Movie

Synopsis

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Credits

Director

Patrick Collerton

Cast

Jonny Kennedy

Crew

John McMullin (Additional Editor)

Michael Brennan (Aerial Camera)

Peter Thompson (Aerial Camera)

Richard Ranken (Cinematography)

Tony Coldwell (Cinematography)

Nick Fenton (Editor)